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I have spent years being mis-diagnosed and mis-treated for a chronic condition. They thought I had bursitis, a pinched nerve, ulnar neuropathy, plantar fasciitis, Morton;s neuroma, the list goes on. What I actually have is called chronic myofascial pain, a disorder where the skeletal muscles get point spasms, little knots that can get as hard as concrete and cause immense referred pain, as well as uncontrollable muscle twitches and horripilation in circumscribed areas for no reason. Since many doctors 'don't believe' in it, it is hard to get appropriate treatment even knowing what it is.
As a result, I frequently hurt as bad or worse when I leave the doctor's office--assuming I will even go, as it is usually so pointless.
[1 point]4 years ago by dauguyReplyEdited 4 years ago by dauguy
No, the indicated treatments according to the manual are all something out of the Middles Ages. They center around forcing a needle into the knot and injecting various substances, from nothing to water to lidocaine, on the (correct) assumption that getting the muscle to un-spasm will cure the pain. The best treatments are not usually covered by insurance, and center around massage and not doing things that exacerbate the condition--no repetitive motion, no cold air (A/C or lack of heating, makes no difference on the affected muscles. Like that's gonna happen and still allow me to eat.
Hard to believe, that really sucks, as if you may be the only one in the world with this problem. Let a doctor have the same thing and see if he can follow that line of treatment, but that still doesnt help you, I am very sorry, hope they wake up and fix you up soon.
Thanks. It is really hard to be in constant pain and not believed. I have found a chiropractor (not my first choice, but there you are) in Ohio who specializes in treating this. He has asked me to call and get referrals to two practitioners he has trained now living in this area, and also suggested I find a doctor who is a member of American Academy of Pain Management. As soon as the show opens and things slack off a bit --say, around the 3rd week of August--I should have time to follow through.
It's got to be so frustrating for a person who is in chronic pain to have a health care practitioner say "it's all in your head". All pain whether acute or chronic is "in your head". The noxious pain sensation does not occur until it gets to your brain where it is perceived. Prior to that it is nothing but a stimulus propagated by physical and chemical means to get to the brain where it becomes pain. I've dealt with chronic pain patients for decades and it is so bad for them when the folks suppose to try to help them make up excuses for their failure such as "it's all in your head".
The diagnosis itself is a "failure diagnosis" since pain is not a cause but a symptom and when you say "chronic" that is admitting up to now traditional treatments have all failed therefore the diagnosis becomes a symptom, not a cause. Slipped disc, measles, strep throat are indicative of physical problems that are caused by something and if you go to the thing that caused it, overload of strep bacteria and eradicate it, then the cause is removed and therefore no symptoms. Not so with chronic pain as now the symptom which no one has been able to find the cause has become the diagnosis.
Before you do that you can take an external device and try it to see if the pain relief justifies the cost and the risk. In most situations the use of interferential therapy will immediately tell you if there is any chance of an implanted device helping or not. Also the entire "tens" industry, external devices, originated from docs realizing there was much less risk, no long term consequences, ie. scar tissue, using an external, rather than surgery to implant an internal. Go here for little dated video that may help clarify,
United States
I think it depends on whether or not you consider a dentist a doctor ;)
hey pain is pain so the answer is yes he's a doc!!
No, but have been told by a doctor: "there is nothing we can do about your pain, you have to learn to live with it"
That happened with a chiropractor--that was the last time to one also.
This comment was deleted.
[1 point] 4 years ago by deleted user ReplyA chiropracter almost killed me. A total misdiagnosis stayed my recovery by months.
I have spent years being mis-diagnosed and mis-treated for a chronic condition. They thought I had bursitis, a pinched nerve, ulnar neuropathy, plantar fasciitis, Morton;s neuroma, the list goes on. What I actually have is called chronic myofascial pain, a disorder where the skeletal muscles get point spasms, little knots that can get as hard as concrete and cause immense referred pain, as well as uncontrollable muscle twitches and horripilation in circumscribed areas for no reason. Since many doctors 'don't believe' in it, it is hard to get appropriate treatment even knowing what it is.
As a result, I frequently hurt as bad or worse when I leave the doctor's office--assuming I will even go, as it is usually so pointless.
That would be a nightmare!!!
Yup. Makes me bitchy too much of the time.
Ouite understandable, have there been thoughts of implanting a gadget that controlls the pain with electric curents?
No, the indicated treatments according to the manual are all something out of the Middles Ages. They center around forcing a needle into the knot and injecting various substances, from nothing to water to lidocaine, on the (correct) assumption that getting the muscle to un-spasm will cure the pain. The best treatments are not usually covered by insurance, and center around massage and not doing things that exacerbate the condition--no repetitive motion, no cold air (A/C or lack of heating, makes no difference on the affected muscles. Like that's gonna happen and still allow me to eat.
Hard to believe, that really sucks, as if you may be the only one in the world with this problem. Let a doctor have the same thing and see if he can follow that line of treatment, but that still doesnt help you, I am very sorry, hope they wake up and fix you up soon.
Thanks. It is really hard to be in constant pain and not believed. I have found a chiropractor (not my first choice, but there you are) in Ohio who specializes in treating this. He has asked me to call and get referrals to two practitioners he has trained now living in this area, and also suggested I find a doctor who is a member of American Academy of Pain Management. As soon as the show opens and things slack off a bit --say, around the 3rd week of August--I should have time to follow through.
It's got to be so frustrating for a person who is in chronic pain to have a health care practitioner say "it's all in your head". All pain whether acute or chronic is "in your head". The noxious pain sensation does not occur until it gets to your brain where it is perceived. Prior to that it is nothing but a stimulus propagated by physical and chemical means to get to the brain where it becomes pain. I've dealt with chronic pain patients for decades and it is so bad for them when the folks suppose to try to help them make up excuses for their failure such as "it's all in your head".
The diagnosis itself is a "failure diagnosis" since pain is not a cause but a symptom and when you say "chronic" that is admitting up to now traditional treatments have all failed therefore the diagnosis becomes a symptom, not a cause. Slipped disc, measles, strep throat are indicative of physical problems that are caused by something and if you go to the thing that caused it, overload of strep bacteria and eradicate it, then the cause is removed and therefore no symptoms. Not so with chronic pain as now the symptom which no one has been able to find the cause has become the diagnosis.
Before you do that you can take an external device and try it to see if the pain relief justifies the cost and the risk. In most situations the use of interferential therapy will immediately tell you if there is any chance of an implanted device helping or not. Also the entire "tens" industry, external devices, originated from docs realizing there was much less risk, no long term consequences, ie. scar tissue, using an external, rather than surgery to implant an internal. Go here for little dated video that may help clarify,
http://painreductiontherapy.com/index.php?/Videos/how-the-infrex-unit-works-to-reduce-or-eliminate-pain.html
bobjohnson@medfaxxinc.com